Friday, June 22, 2007

Make a Difference

Members of a cancer community share and support each other in good times and in bad. Sadly I'm finding that there are more bad times than good when cancer is involved.

Frederick is a handsome 7 month old little boy with a rare brain tumor called ATRT. He was born with this tumor and has truly been battling cancer every day of his life. Frederick is full of heart melting smiles and loves to play with toys. His family just found out that despite a complete resection, the tumor has returned. The doctors say he will be home with Jesus in a matter of weeks.

Lexie is a beautiful 7 month old little girl with the same rare brain tumor as Frederick. Doernbecher has only seen 2 cases of ATRT and they are Frederick and Lexie, babies born just 15 days apart. Lexie is fighting hard and we are praying for complete healing. There have been a few set backs of late but we remain as always, hopeful.

Please pray for Lexie and Frederick and their families. They need to feel God's arms around them now more than ever. These are just a few of the recent events that make me want to crawl under the covers and hide. But at the same time, we have also had some victories in my cancer community.

Maddie is CANCER FREE! Her little brother Owen bravely donated his bone marrow and has saved his big sister's life. He was just 20 months old when he donated his marrow...are you as brave as Owen? Have you signed up for the marrow registry?

Gabriel is officially CANCER FREE! He was diagnosed in April 2006 with a rare type of Leukemia. One of his treatments was a drug called Gleevac. The American Cancer Society created Gleevac. I am so proud to support the ACS through Relay for Life. Gabriel's victory fans the flame in me to get out there and raise $!

I'm not trying to use these families to plug cancer causes. I'm just heartsick for Frederick and Lexie and I want to do something. I want to show you that the marrow registry and donations to the ACS really do make a difference. They make a difference in the lives of kids that I actually know and love.

I don't want to see any more families lose their babies to cancer. So I pray for God's healing hands on all of the kids in my cancer community AND I ask everyone I meet to support a cancer organization. Just pick any cancer organization and give your time or your money or your marrow or your airline miles or a toy or anything. IT MAKES A DIFFERENCE!


Newsom June 22, 2007 at 9:31 PM  

I too felt compelled to mention these hero's on Grady's site, it feels so raw right now. My love to you and gratitude for your continued support!

God Bless!

Anonymous June 22, 2007 at 11:13 PM  

AMEN SISTA!!! -Becci

Anonymous June 23, 2007 at 7:21 PM  

It truly breaks my heart to read about fredrick and Lexie being so sick. Yet it just calls for more prayers and just believing. Not to mention the ways (in addition to prayer) to help fight this battle that you have mentioned Lori! One thing I have taken form the past 8 months is to keep fighting in anyway you can (prayer, time, money, ect). Thank you Lori for continuing to encourage others to do all that they can. You are making a difference, one person at a time.


Anonymous July 1, 2007 at 3:50 PM  


It breaks our heart too and we have "surviors guilt" at times seeing all the pain cancer is causing in other little ones lives. (And their families.) Don't be ashamed to plug for these great organizations!

I'm getting on the bandwagon with our transplant doc to help with awareness and funding for a new cord blood registry in Oregon. (A donated umbilical cord was where they got the stem cells for Gabe's transplant - praise God - because we had NO match in the BM registry!)

BTW- I've been thinking about joining you in the Relay, but we're going to be out of town that weekend. One of these days we HAVE to meet in person! =)


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